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Lysosomal Diseases Australia (LDA) is a national umbrella organisation formed to represent the interests of people effected by lysosomal storage disorders including their families and carers, to maximise resources available for support services, treatment and research.

LDA will work together with parent support groups built around specific disorders. It is recognised that these groups perfrom a vital function in helping patients and families come to terms with a new diagnosis, and with on-going, day-to-day management and support issues.

Because of the individual rarity of these disorders, LDA will pursue issues generally beyond the scope of the family-based groups.

Information about membership can be obtained by contacting the Public Officer.

 

 

 
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