Lysosomal Diseases Australia
(LDA) is a national umbrella organisation formed to represent the
interests of people effected by lysosomal storage disorders including
their families and carers, to maximise resources available for support
services, treatment and research.
LDA will work together
with parent support groups built around specific disorders. It is
recognised that these groups perfrom a vital function in helping
patients and families come to terms with a new diagnosis, and with
on-going, day-to-day management and support issues.
Because of the individual
rarity of these disorders, LDA will pursue issues generally beyond
the scope of the family-based groups.
Information about membership
can be obtained by contacting the Public