LYSOSOMAL DISEASES AUSTRALIA

Registered Office:
Department of Chemical Pathology,
Women's and Children's Hospital
72 King William Road,
North Adelaide South Australia, 5006.

Correspondence should be marked Attention:
Public Officer, Lysosomal Diseases Australia.

Enquiries about LDA and its activities can be directed to any Board member at the contact points provided below. If you would like to be placed on our mailing list, please contact the Public Officer.

Mr. Ken Hatton


LDA regrets that Ken is no longer a member of the Board. We sincerely thank him for his enthusiasm and commitment to LDA and its goals since its beginnings, and wish him well.




Professor John Hopwood (Chairman) (SA)

John heads the Lysosomal Diseases Research Unit at the Women¹s and Children¹s Hospital in Adelaide. Over the last 20 years, he and his group have researched methods to achieve diagnosis at birth and effective therapy for patients affected by lysosomal storage disorders.

Phone: (08) 8161 7293
Fax: (08) 8161 7100
E-mail: jhopwood@medicine.adelaide.edu.au

Ms. Sophie Lazenkas (Public Officer/Secretary) (SA)

Sophie is the Manager of Business Operations in the Lysosomal Diseases Research Unit in Adelaide.

Phone: (08) 8161 7393
Fax: (08) 8161 7100
E-mail: slazenkas@medicine.adelaide.edu.au



Dr. Peter MacDonald (NSW)

Peter is a general medical practitioner and was an Independent Member of Parliament in the New South Wales legislature between 1991 and 1998. He has been a member and chairman of a number of parliamentary committees dealing with health and social issues.

Dr. Jim McGill (QLD)

Jim is a metabolic physician and clinical geneticist at the Royal Children¹s Hospital and Mater Children¹s Hospital in Brisbane. He has many years¹ experience with managing the care of patients affected by lysosomal storage disorders.

Phone: (07) 3636 8176
E-mail: McGillJ@health.qld.gov.au

Ms. Margaret Sahhar (VIC)

Margaret is a social worker at the Victorian Clinical Genetics Service. She has extensive involvement in the establishment of a number of support groups throughout Victoria. In 1998, she established the Genetic Support Network of Victoria, an umbrella group for all the genetic support groups.

Phone: (03) 8341 6256
E-mail: sahharm@cryptic.rch.unimelb.edu.au

Mrs. Ros Smith (Deputy Chairman) (NSW)

Ros had a child affected by a lysosomal storage disorder and has been involved with the Australian Mucopolysaccharide and Related Diseases Society Aust. since its inception in 1983.

Her commitment to families affected by genetic disorders is demonstrated by her continued involvement with umbrella organisations such as The Association of Genetic Support of Australasia.